Living with a chronic illness can be isolating, especially when the path to diagnosis is long and filled with uncertainty. In this episode, our guest shares what it has taken to manage a complex respiratory condition that reshaped nearly every part of her life. From misdiagnoses to near-death experiences, her story brings voice to the kind of health journey that often goes unseen, even in medical spaces.
We talk about what it means to keep showing up for yourself when answers are hard to find, and how advocacy can grow out of personal struggle. This conversation opens space for reflection on the emotional weight of chronic illness, the fear, the setbacks, and the resilience it takes to navigate it all. It’s a reminder that lived experience has the power to open doors, challenge systems, and offer real hope to those still trying to make sense of their own path.
Rhonda Nelson
Rhonda Nelson, renowned patient advocate, author, speaker and philanthropist is a beacon of resilience and strength. Her charitable work spans championing equitable access to affordable healthcare, supporting those diagnosed with AERD (Aspirin Exacerbated Respiratory Disease), serving as a voice in the foster care system and encouraging women to reinvent themselves in their different stages of life.
Rhonda serves on the Executive Board of Directors with the Asthma & Allergy Network, impacts legislation and speaks nationally, raising awareness for AERD. Having dealt with AERD (Aspirin Exacerbated Respiratory Disease) herself for more than twenty years, she has experienced many misdiagnoses, a near fatal struggle to find relief, a desperate search for answers and a constant journey to access proper support. Rhonda and her husband Wayne, of the Little River Band tirelessly devote their time and resources to helping others to navigate this challenging medical journey frequently associated with severe respiratory disease.
Rhonda is a firm believer in empowering women to pursue the dreams they have for their lives, regardless of age, while finding strength in overcoming challenges. In her book, "A Different Life,” Rhonda not only pulls back the curtain on celebrity life, but also offers readers the chance to hear never-before-told stories, enjoy treasured family recipes and photos all while getting a taste of all things pertaining to life on the road.
Rhonda's Resources
The Jōrni Resources
https://thejornipodcast.com for show notes
https://thejorniblog.com for more holistic healing and mental health resources
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